Monthly Archives: November 2016

Extended Delay of CRT Accessories Cut in House Bill

November 28, 2016

CRT Stakeholders and Friends,

Language to extend the current delay in Medicare cuts to CRT power wheelchair accessories to July 1, 2017 has been added to legislation to be considered this week. The House of Representatives has included a 6-month extension in the “21st Century Cures Act”, a 996-page bill relating to medical/healthcare research, innovation, and treatment.

The Cures Act is expected to be voted on this week in the House of Representatives and once passed it will go to the Senate for their vote, likely next week. Should it be passed by both chambers, it would then go to the President for signing.

As we’ve reported, our challenge was to get attached to a larger bill. So it is good news we are in a bill that will be voted on in lame duck. The not-so-good news is it does not expand the delay to CRT manual wheelchair accessories.

The reality is, given the difficult and limited year-end legislative environment, our supporters worked hard to get the best relief achievable. The 6-month period kept the CRT legislation cost down and most importantly allows time for next year’s new Administration/Congress to pursue a permanent fix through policy or legislation.

The Cures Act also includes Competitive Bidding “rural relief” language that would retroactively rescind the broad DME July 1, 2016 Medicare cuts until January 1, 2017. Providers would be able to recoup CB payment reductions incurred for dates of service from July 1 to December 31, 2016. The rescinded payment cuts would go back into effect on January 1, 2017.

Getting a CRT delay included in the Cures Act is only the first step. Now the bill must be passed in the House and Senate, which is not an automatic process. We need to stay engaged as things move ahead.

We will provide further updates as we move through this week.

Regards,

Don
Donald E. Clayback
Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754
dclayback@ncart.us |www.ncart.us

Happy Thanksgiving

CRT Stakeholders and Friends,

As we prepare to celebrate this important holiday, we wanted to take a minute and wish you a sincere Happy Thanksgiving.

We are very thankful for all your support and assistance throughout the year collectively fighting to protect access to CRT.  It’s not easy finding time for advocacy, but your participation is critical and is paying off.

We also are very thankful to those Members of Congress, their staff, and other policy makers who are “getting the CRT message” and doing their part to help.

Of course we can’t pass up an opportunity to remind you to use www.protectmymobility.org to send your Members of Congress a Thanksgiving message to stop the January 1 cuts to CRT wheelchair accessories.

Please accept our warmest Happy Thanksgiving wishes and enjoy the time with your family and friends.

Regards,

Don

Donald E. Clayback

Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754

How an Accessible Playground Improves Your Community

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Playgrounds can provide more than just a break from class. They offer the chance to build friendships, develop teamwork, and create joyful memories. At NCART, we believe that every child, no matter their physical restrictions, should have the chance to enjoy the benefits every recess brings. Find out how accessible playgrounds can benefit your community and how you can help ensure that no child gets left behind.

Why do we need accessible playgrounds?

For children affected by spinal and nerve diseases, playgrounds provide potential problems. Loose rocks covering the ground makes it impossible to maneuver crutches and wheelchairs. Swings do not provide additional back support and can cause potential danger from falling. Jungle gym equipment is narrow and steps hinder children with disabilities. Due to this, playgrounds are no longer safe and fun but provide potential risk of injury.

How can an accessible playground benefit my community?

For parents of children with special needs, the start of school brings additional concern. Since many schools do not have accessible playgrounds, they not only worry about injury, but about their child being left out of the group. By incorporating an accessible playground, you are procuring inclusion for all children as well as installing the belief of teamwork in your community. Ensuring that everyone feels welcome in your neighborhood can strengthen the ties of your town.

How can I help build an accessible playground?

Getting an accessible playground built can seem like an overwhelming endeavor. To ease this concern, start by forming a committee within your community. Make sure to include individuals that can further help your cause such as lawyers, accountants, caregivers, and construction project managers. Speak with local businesses to expand your team. Create a separate committee for fundraising and keep your community involved throughout the process. Once you have your team, start planning tactics to raise awareness of your efforts. Continue to partner with companies across the state to aid in your fundraising events. Doing so will help spread out your workload and ensure maximum exposure. For more information on starting an accessible playground visit www.unlimitedplay.org to find out the steps you can take to help make your community stronger.

Accessible playgrounds are just one way to ensure that children with special needs are included in their community. At NCART, our members help make these ideas possible. Learn more on how your business can become a member today and the benefits our team can provide.

3 Ways to Show Support for Loved Ones with Spina Bifida

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This past October was National Spina Bifida Month, recognizing the 1,500 babies born each year with Spina Bifida. The leading neural tube defect in the United States, an estimated 166,000 people are affected with this condition each day. However, at NCART, we know that individuals with Spina Bifida have long demonstrated the strength and resilience required to conquer the world. By showing your support, you can provide additional help to spread awareness and assistance year-round.

What is Spina Bifida?

The most common permanently disabling birth defect in the United States, Spina Bifida literally means ‘split spine’. It occurs when a baby is in the womb and the spinal column does not close all the way. Scientists have not determined the cause of the defect, however, they believe that genetic and environmental factors act together to cause the condition.

How You Can Help

  • Become a respite provider

For families with Spina Bifida, there is little time to rest. Specialized doctors’ visits must be scheduled months in advance and usually require a full day of dedication. Equipment that provides assistance such as braces, crutches, and wheelchairs must be maintained to ensure that they are in proper working order. Respite providers give temporary relief care to aid in these responsibilities. They also provide support so that family caregivers can accomplish their day-to-day tasks.  Learn more about becoming a respite provider and the lasting difference you can make in a families’ life.

 

  • Volunteer at an adaptive sports camp.

For individuals with Spina Bifida, life does not slow down. Each year, adaptive sports camps offer the chance to show off their athletic prowess, determination, and spirit. From archery and skiing to rafting and kayaking, there is literally no boundaries to what individuals with Spina Bifida can accomplish. By volunteering at an adaptive sports camp, you are aiding in asserting their independence and health as well as creating new lifelong friendships. To get involved, visit http://www.disabledsportsusa.org/ and find out how you can help this important program.

 

  • Participate in a Walk-N-Roll.

Each year, funds are raised to support local community programs and services for those affected by Spina Bifida through family-friendly Walk-N-Roll events. These non-competitive one mile walks include educational resource fairs and are free of charge for the public. Find out when a Walk-N-Roll will hit your town and get involved today.

Families that are affected by Spina Bifida face challenges each day but, by offering support, you can make a difference. At NCART, we strive to ensure that all people with disabilities get the care they require. That’s why we are working to stop Medicare cuts threatening specialized wheelchair systems needed by family with spinal cord injuries. Help our mission by emailing your Members of Congress today to ask for their support.