Monthly Archives: April 2016

Understanding Multiple Sclerosis

NCART-Blog-Understanding-MS

In our last blog, we took a closer look at Traumatic Brain Injuries, one of the conditions those who use complex rehab often live with. For today’s blog, we’re going to look at another condition: multiple sclerosis.

What is Multiple Sclerosis?

Multiple sclerosis occurs when the myelin coating around the nerve fibers in the central nervous system become damaged, leading to an interference with the transmission of nerve signals between the brain, spinal cord and the rest of the body. One analogy people often use is that multiple sclerosis is akin to an electrical wire that’s been stripped of its protective coating.

Who gets Multiple Sclerosis?

Doctors aren’t sure what causes multiple sclerosis, but they think it may have something to do with people being pre-disposed to it and then being exposed to something in their environment that sets it off. It has not been proven to be hereditary, but doctors do know that it’s much more prevalent among those of northern European descent. Women are also more prone to developing it than men. Multiple sclerosis usually develops between the ages of 20-50, but some have had it as young as 2 and as old as 75.

What are the signs of Multiple Sclerosis?

Some of the common signs include:

  • Numbness or weakness in one or more limbs
  • Partial or complete loss of central vision, usually in one eye, often with pain during eye
    movement (optic neuritis)
  • Double vision or blurring of vision
  • Tingling or pain in parts of your body
  • Electric-shock sensations that occur with certain head movements
  • Tremor, lack of coordination or unsteady gait
  • Slurred speech
  • Fatigue
  • Dizziness

 

These symptoms can also appear in other diseases, so if you experience any of these, make sure you’re tested by your doctor.

At NCART, we fight for those who are living with Multiple Sclerosis and other diagnoses that present challenges to mobility, to make sure they can have access to medically-necessary complex rehab technology.

We would like to acknowledge the work that the National Multiple Sclerosis Society has done for those who are living with MS. They seek a cure to the disease, as well as offer resources to those who live with multiple sclerosis. We would also like to recognize the work of the Multiple Sclerosis Foundation and the Multiple Sclerosis Association of America for their contributions to finding a cure.

Invite Congress to April 21st CRT Briefing and Product Expo

April 1, 2016

Invite Congress to April 21st CRT Briefing and Product Expo

CRT Stakeholders and Friends,

To continue to increase the understanding of CRT in Congress and gain additional support for our CRT legislation (HR-3229/S-2196 and HR-1516/S-1013) we are holding a “CRT Briefing and Product Expo” on Capitol Hill. The event will be held on Thursday April 21, 2016 in the House Cannon Building Room 340 between the hours of 1:00 PM and 5:00 PM.

The theme is “Ensuring Access to CRT for People with Disabilities: What Is Complex Rehab Technology? What Congressional Action Is Needed?”

The program is being presented by NCART, the United Spinal Association, and the National Multiple Sclerosis Society, in coordination with the offices of Representatives Jim Sensenbrenner and Joe Crowley.

There will be 20 minute briefings repeated at 1:00 PM, 2:00 PM, 3:00 PM, and 4:00 PM. The briefings will each be followed by a Product Expo to allow attendees to walk around and have an interactive experience with CRT products. The Expo will provide hands-on displays of CRT manual wheelchairs, power wheelchairs, seating and positioning products, and other equipment highlighting how CRT is different from DME.

People with disabilities, clinicians, providers, manufacturers, and other advocates will be in attendance to provide demonstrations and answer questions.

We Need Your Help to Get Your Members (and Staff) to Attend

This is a great educational opportunity to further demonstrate to Congressional Members and staff what CRT is all about and how they can help protect access.

To make the most of this event we need CRT stakeholders to reach out to your Member offices and get them to attend. Download the formal invitation with the details they need to know and send an email urging them to attend. You can also use this link to send a prepared invitation through our email system.

At Access2CRT.org you can find a listing of co-sponsors signed on to HR-3229/S-2196 (to protect access to wheelchair accessories used with both CRT manual and CRT power wheelchairs by prohibiting the application of Medicare competitive bidding rates) and of co-sponsors signed on to HR-1516/S-1013 (to create a Separate Benefit Category for CRT and provide needed improvements in coverage, coding, and standards).

Thanks for contacting your Member offices over the next few days and sharing the invitation.

Let us know if you have any questions or need assistance.

Regards,

Donald E. Clayback
Executive Director | NCART
Office 716-839-9728 | Cell 716-913-4754
dclayback@ncart.us |www.ncart.us